Thanks to my pulmonologist, I've just learned of a paper published in March in the American Journal of Respiratory and Critical Care Medicine entitled "Diffuse Idiopathic Pulmonary Neuroendocrine Cell Hyperplasia: A Systematic Overview." To be frank, there's nothing much new in this paper. But what is of interest is that the authors, a group at the Mayo Clinic in Arizona, propose the establishment of a national registry for patients diagnosed with DIPNECH to enable further study with the ultimate goal of establishing treatment guidelines.
The senior author is Farouk Mookadam, MD, MSc of the Department of Medicine. His e-mail address for correspondence and reprints is mookadam.farouk@mayo.edu.
Let's all write and encourage him to work on establishing this registry!
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